Hayley Okines,136 Years Old Teenager Dies - Poem by Akhtar Jawad
When a child is born with a rare disorder,
That can’t be cured and is carried till death,
My Lord! I raise my eyes to your high skies,
Why you spring such a painful flower?
Every ethics has a funny reply,
I smile; yes I just smile, as these replies,
Are merely to defend their chosen belief,
I see a blank blue board, how high I fly!
The teen aged girl, a patient of Progeria,
She was seventeen, the sweet seventeen,
When she died she looked as a too old lady,
Are such children, a nature’s Hysteria?
Who can reply the hysterical misdeeds?
Hayley Okines is a question mark,
Is living matter just an accident?
No, says the heart, but it bleeds!
Hayley Okines, I am restless,
May your soul rest in peace!
Hope we shall meet one day,
And see you as a beautiful piece!
(Hayley Leanne Okines (3 December 1997 – 2 April 2015) was an English girl with the extremely rare aging disease known as progeria. She was known for spreading awareness of the condition. Although the average life expectancy for sufferers is 13 years, Hayley was part of a drug trial that had seen her surpass the doctors' predictions of her projected lifespan. However, she died on 2 April 2015 at the age of 17 due to complications with pneumonia,4 years beyond the doctors' initial predictions and after attending a full scholastic year in college.
Diagnosed in 1999, at 2 years old, Okines was born with progeria, a genetic disease that causes her to age eight times faster than the average person. This put her projected lifespan at thirteen years. She frequently travelled to Boston to receive new treatments in the United States. In 2012, an autobiography of Hayley Okines was published titled Old Before My Time. The book was co-authored by Hayley Okines, her mother Kerry Okines, and contributor Alison Stokes.
Hayley was living in Bexhill-on-Sea, East Sussex, with her mother Kerry, her father Mark, and younger siblings Louis and Ruby (neither of whom has progeria) . She was attending Bexhill College.)
Thanks to BBC Urdu First Page and to Wikipaedia.
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